MSBase Foundation definition

MSBase Foundation means the not-for-profit charitable organisation incorporated as a company in Australia, which provides and administers the web- based MSBase/MGBase Registry and runs the MSBase/MGBase Observational Study. “The MSBase Registry” (▇▇▇.▇▇▇▇▇▇.▇▇▇) is the database and MSBase Website that hosts all pseudonymised patient data and functions used for sharing, tracking and evaluating outcomes of MS and other NIDs (NMO etc). “The MGBase Registry” (▇▇▇.▇▇▇▇▇▇.▇▇▇) is the database and MGBase Website that hosts all pseudonymised patient data and functions used for sharing, tracking and evaluating outcomes of MG.
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Examples of MSBase Foundation in a sentence

  • The MSBase Foundation obtains funding from commercial entities to provide summary results in reports derived from analyses of the global dataset or subsets thereof.

  • The MSBase Foundation owns the infrastructure of the patient database and the digital envelope in which the data extract is contained, but never the data itself.

  • The MSBase Foundation provides Investigators with the best possible logistic solutions to meet these challenges at no cost.

  • The MSBase Foundation does not own any of the data contained in the Registry.

  • This means that patients sharing data to the Registry through their Centre cannot be easily identified without the use of additional information that is not collected by the MSBase Foundation.

  • Reimbursements are subject to execution of a financial Grant Agreement between the Centre, the PI and the MSBase Foundation and must be paid to an Institutional Bank Account of the Centre.

  • The MSBase Foundation may receive funding from external sources to conduct contract analyses or sponsored sub-studies.

  • The MSBase Foundation may then be able to provide participating Centres with grants to help reimburse administrative costs incurred during the period of participation.

  • The MSBase Foundation is governed by a Board of Directors who have all powers and duties of direction and management of the Foundation.

  • Each participating Centre (led by their PI) is acting as a Controller when providing data to the MSBase Foundation under this Participation Agreement.