DATA USE CERTIFICATION AGREEMENTCertification Agreement • September 22nd, 2021
Contract Type FiledSeptember 22nd, 2021Access to human genomic data will be provided to approved research investigators who, along with their institutions have certified their agreement with the expectations and terms of access detailed below. It is the intent of NIH that Approved Users of controlled-access datasets obtained through the Data Access Request (DAR) recognize any restrictions on data use established by the submitting institutions (“Submitting Institutions”) through the Institutional Certification and stated on the dbGaP study page.
DATA USE CERTIFICATION AGREEMENTCertification Agreement • May 8th, 2021
Contract Type FiledMay 8th, 2021The National Institutes of Health (NIH) has established NIH-designated data repositories (e.g., database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), NIH Established Trusted Partnerships) for securely storing and sharing controlled-access human data submitted to NIH under the NIH Genomic Data Sharing (GDS) Policy. Because the volume of human genomic and phenotypic data contained in these repositories is substantial and, in some instances, potentially sensitive (e.g., data related to the presence or risk of developing particular diseases or conditions and information regarding family relationships or ancestry), data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.
DATA USE CERTIFICATION AGREEMENTCertification Agreement • September 17th, 2020
Contract Type FiledSeptember 17th, 2020The National Institutes of Health (NIH) has established NIH-designated data repositories (e.g., database of Genotypes and Phenotypes (dbGaP), Sequence Read Archive (SRA), NIH Established Trusted Partnerships) for securely storing and sharing controlled-access human data submitted to NIH under the NIH Genomic Data Sharing (GDS) Policy. Because the volume of human genomic and phenotypic data contained in these repositories is substantial and, in some instances, potentially sensitive (e.g., data related to the presence or risk of developing particular diseases or conditions and information regarding family relationships or ancestry), data must be shared in a manner consistent with the research participants’ informed consent, and the confidentiality of the data and the privacy of participants must be protected.