ORPHAN DATA Clause Samples
The ORPHAN DATA clause defines how data that is no longer associated with a particular user, account, or system—often due to deletion, migration, or account closure—is handled by the parties involved. Typically, this clause outlines the responsibilities for securely storing, deleting, or transferring such data, and may specify timeframes or methods for its management. Its core function is to ensure that unassigned or residual data is properly managed, thereby reducing risks related to data privacy, security, and regulatory compliance.
ORPHAN DATA. If a replacement PI is not nominated, or where the existing PI or Centre Authority does not respond to communications from the MSBase Operations Team, the Operations Team will continue to contact the Centre over a period of 12 months to attempt to re-establish a Centre PI. If no PI can be nominated over the course of this time, the MSBase Operations Team will ask the Centre Authority how they wish to proceed with respect to retaining the pseudonymised orphan data that are still useful and necessary in relation to the Observational Study research purposes, for which they were collected. If the Centre Authority cannot be contacted over the course of this time, or if the Centre is closed, the MSBase Operations Team will remove the orphan data from the Registry.
ORPHAN DATA. If a replacement PI is not nominated, or where the existing PI or Centre Authority does not respond to communications from the MSBase Operations Team, the Operations Team will continue to contact the Centre over a period of 12 months to attempt to re-establish a Centre PI. If no PI can be nominated over the course of this time, the MSBase Operations Team will ask the Centre Authority how they wish to proceed with respect to retaining the pseudonymised orphan data that are still useful and necessary in relation to the Observational Study research purposes, for which they were collected.
ORPHAN DATA. If a replacement PI is not nominated, the MSBase Foundation Operations Team will contact the Centre over a period of 12 months to attempt to re-establish a Centre PI. If no PI can be nominated over this time, or if the Centre is closed, the pseudonymised Centre data will remain in the MSBase/MGBase Registry global data pool.