Examples of thalassemia in a sentence
Thalassemia, which primarily affects individuals of Asian, Mediterranean, and Middle Eastern decent, is a group of inherited blood disorders that inhibits the body’s ability to produce sufficient hemoglobin.6 Individuals with the most severe forms of thalassemia require frequent blood transfusions and ongoing monitoring and management of complications such as heart failure and liver disease.
The Integrated Scheme will encourage research and development activities in all areas of education of children with special needs including action research, researches to improve learning of CWSN, especially focusing on children with high support needs (Thalassemia, Hemophilia, Sickle Cell disease and Chronic neurological conditions etc), eventually leading to concrete learning outcomes.
This funding opportunity will build upon the activities undertaken during the previous funding cycle but will promote a more even distribution of access to expert thalassemia care by funding one recipient in each defined region and thereby extending the reach of a limited number of experts.Additionally, the Thalassemia National Coordinating Program will create efficiencies and reduce duplication across regional activities as well as be able to respond to national, emerging issues.
In collaboration with the Thalassemia National Coordinating Program, recipients will provide ongoing education on evidence-informed diagnostic/treatment guidelines and best practices for disease management1 to hematologists and health care providers who see individuals with thalassemia.
Include a description of a plan and/or innovative methods that you will use to address the following: Project 1:• Establish a regional network comprised of hematologists and other health care providers in a minimum of three states within the HRSA Thalassemia Region (the state in which you are located plus two other states) to addressaccess to services for individuals with Thalassemia.
Project 1: Thalassemia Regional ProgramUp to three recipients will be funded for Project 1.
Program Goal:The goal of the Thalassemia Program is to improve access to evidence-informed care for individuals living with thalassemia and their families.
The Thalassemia Program is not a program subject to the provisions of Executive Order 12372, as implemented by 45 CFR part 100.
Although there are no national estimates on the prevalence of Thalassemia, California has identified that 1 in 10,000 infants born in the state are diagnosed with some form of alpha-thalassemia.7 Due to immigration, prevalence of thalassemia may be higher.8Many thalassemia patients and their families face barriers accessing high quality treatment.
This notice announces the opportunity to apply for funding under the FY 2021 Thalassemia Program.